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June 27, 2017

New Jersey mom shares son's monstrous bill for rare disorder in midst of Trumpcare debate

Politics Health Care
Health Care @aliranger29/Twitter

A New Jersey mother's post sharing her son's medical costs has gone viral.

As the debate on a new health care bill rumbles on in Washington, D.C., a New Jersey mom is looking to shed some light on her daily life caring for her 3-year-old son, Ethan. 

Alison Chandra took to Twitter last week to share a monstrous medical bill for Ethan, who was born with heterotaxy syndrome, a rare disorder where organs are formed in abnormal parts of the body.

"It seems fitting that, with the #TrumpCare debate raging, I got this bill in the mail today from Ethan's most recent open heart surgery," she wrote Friday.

In a separate tweet, Chandra broke down the expenses, finding that Ethan's 10-hour stay in the operating room at Boston Children's Hospital, one week in its cardiac intensive care unit and a week on its cardiac floor would topple $230,000 without insurance. 

Her original post has since been shared more than 55,000 times on Twitter.

"My fear is that this bill comes into play and suddenly essential health benefits are no longer covered, like hospitalization, prescription medications," Chandra told CNN. "He will rely on prescription medications for the rest of his life."

The Senate's draft bill was unveiled last week after much anticipation from the GOP, about two weeks after the House passed its own measure that looks to repeal and replace the Affordable Care Act.

U.S. Sen. Pat Toomey, R-Pa., told The Washington Post last week that he is "likely" to vote for the American Health Care Act, which he called an "important and constructive first step" in doing away with Obamacare. 

U.S. Sen. Bob Casey, D-Pa., called the legislation "obscene."

Senate Majority Leader Mitch McConnell hopes to get a vote on the Senate floor before the July 4 recess, Reuters reported Tuesday.